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In Canada, there is a treatment called Spinraza available, which increases survival motor neuron (SMN) protein production, addressing an underlying cause of SMA. Before this treatment, babies with SMA did not have this hope and would likely not live to reach the age of 2.

There is, however, a treatment available that goes by the name Zolgensma. It is made up of a new, working copy of a human SMN gene that is placed inside a vector. A vector’s job is to take the new, working SMN gene to the motor neuron cells in the body. When the new gene reaches its destination, it is ready to tell the motor neuron cells to start making SMN protein. Although these are all positive outcomes and would allow beautiful baby Eva to no longer have the difficult symptoms of SMA making her life easier without difficulty walking, eating or breathing. The upsetting downside of it all is that it is FDA approved only in The United States and not in Canada.

This treatment has a large price tag of $2.1 million dollars! USD! That’s right, talk about putting a price tag on a child’s life. It is a devastating amount that is unattainable by a middle-class family. Please consider helping donate or simply sharing this page as every effort and donation makes a difference and will get Eva that much closer to the life-saving medication she so desperately needs. This is something no child or human should ever have to experience.